Jessie Nelson’s heartbreaking ‘sorrow room’ is full of toys the twins can’t use

Jesy Nelson opens up about raising twin daughters Ocean Jade and Story Monroe in her upcoming Prime Video documentary

A touching scene unfolds in a new mother’s empty bedroom jesse nelson’s Home. The room is divided between medical supplies needed to feed her twin girls and toys they cannot enjoy.

Ex-Little Mix member welcomed Ocean Jade and Story Monroe Nelson-Foster Last year. The twins were later diagnosed with spinal muscular atrophy, a rare condition that causes muscle wasting.

A revealing documentary features Jessie’s mother Janice, showing the camera crew around the spare room, saying: “It’s quite organized actually, but it’s all their stuff they can’t use and all their medical stuff, their feeding tubes and stuff, but if Jessie looks down at it she gets upset, so we keep it in here.”

Holding a brand new padded elephant rocking chair, she adds: “It’s all things we bought like toys, and nothing was suitable because everything has to be specific because of their spines.

“I said, ‘You should donate them to the hospital and things they need. Hopefully, someone else will get the benefit of them,'” reports mirror.

Program jesse nelson: Life Changing details her mission to secure universal newborn SMA screening across the United Kingdom.

The 35-year-old pop star is urging the public to support the petition which has collected enough signatures to require a parliamentary discussion. MPs are scheduled to vote on the matter this month.

The documentary shows Jessie traveling to Scotland on March 23 this year, the day health authorities introduced routine SMA testing for newborns.

Jessie hugs one of the health care professionals performing the screening and is thrilled with the results, though she admits the moment is bittersweet – this straightforward test could have allowed Ocean and Story to be diagnosed at birth and treated immediately, rather than months later, when more damage had been done.

She tells the therapist: “These kids are going to live a different life to our kids, it’s amazing what you’re doing.”

As Jessie walks out of the clinic with tears streaming down her cheeks, she says: “I feel like I’m upset, but part of me feels angry. I know it’s amazing, but it’s also bullshit.

“I feel very angry too. It’s very disappointing.”

The documentary shows Jessie’s twins using special seating arrangements and undergoing therapy in the hopes that they will eventually be able to walk.

However, they currently struggle with bottle feeding at times, requiring Jessie to be tube fed during meals.

Watching the documentary’s conclusion, Jessie reflects: “In the beginning, I felt like I was going to feel that sadness and that heartache for the rest of my life. But the pain subsides. When something like that happens in your life, it puts everything into perspective. As you know, there’s a reason why it happens.

“It’s this entire community that has been fighting for years to be seen and heard, so that no other family ever has to go through this again. That’s why the girls’ diagnosis has become normal to me now. That’s why I now feel like I have purpose, and they give me strength every day.

“They give me a reason not to be sad. Because when you’re going through all this, and they’re still smiling, how can I be sad?”

The documentary concludes with a touching ending as the twins celebrate their first birthday, with Story saying “mom” for the first time.

Jessie, born in May 2025, and her partner Zion remained a couple for the first six months but have since gone their separate ways.

Jessie opened up, saying: “We still get on. There’s no bad feelings. My main priority is them, so, I just want to be the best mom I can be.”

“I want the best energy, and I want to stay positive. We were both dealing with this situation in completely different ways, so I decided it would be better if we split up.”

Jessie Nelson: Life Changing will be shown on Prime Video this July.